One of the major reasons many of us require lung transplants to survive is due to Pulmonary Fibrosis, especially Idiopathic Pulmonary Fibrosis (IPF) which those of us who have it know is a debilitating disease. The Coalition For Pulmonary Fibrosis is an excellent resource for both patients and healthcare professionals. Here's an excerpt from their web site:
"About the Coalition for Pulmonary Fibrosis
The Coalition for Pulmonary Fibrosis (CPF) is a 501 (c) (3) nonprofit organization, founded in 2001 to further education, patient support and research efforts for pulmonary fibrosis, specifically idiopathic pulmonary fibrosis (IPF). The CPF is governed by the nation's leading pulmonologists, individuals affected by pulmonary fibrosis, medical research professionals and advocacy organizations. With more than 9,500 members nationwide, the CPF is the largest nonprofit organization in the country specifically dedicated to helping those with IPF."
This site is also an excellent resource for the latest news, such as survival rates and research updates. Well worth visiting.