Sunday, March 01, 2009

Toronto Lung Transplant Support Group Meetings

Support & Education Group Meetings have a pre-transplant focus and are held Wednesdays at 11AM, 11th floor west, Room 1135, New Clinical Services Building (NCSB), Toronto General Hospital.

Meetings are intended for pre-transplant patients/families and early post-transplant patients. Other post transplant patients are invited to attend when they are in from out of town for assessment.

  • Topics are subject to change without notice

  • Cystic Fibrosis (CF) patients are not permitted to attend the support & education group meetings until further notice- this is a new policy -

  • CF patients may request supplementary information on any topic of interest discussed at these group meetings through Tara Bolden

  • Support people may attend all meetings

  • Topics * Pre-Tx LUNG SUPPORT &
    EDUCATION GROUP March - April 2009

  • March 4th - General Meeting - Open Forum

  • March 11th - Transplant Pharmacy - Medications Q & A

  • March 18th - General Meeting - Open Forum

  • March 25th - Janet Madill, Dietitian - Nutrition & Weight Management

  • April 1st - General Meeting - Open Forum

  • April 8th - Sassan Azad, Clinical Trial Coordinator - Trial & Transplant Updates

  • April 15th - Meeting Cancelled

  • April 22nd - Mary Ann Rosales, RN & Edilyn Llameg, RN
    Discharge Post-Tx

  • April 29th - Dr. Susan Abbey - Meditation & Relaxation

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Ana Stenzel said...

Dear Toronto Lung Tx Group,
I am a lung tx recipient from Stanford and a consultant for APT Pharmaceuticals in California. APT is sponsoring the clinical trials at Univ of Toronto for inhaled cyclosporin. I am helping them in a project to create awareness of lung transplant research among lung transplant candidates and recipients. We hope that by educating patients, they will be more able to make informed choices about being involved in clinical trials. We are organizing a volunteer patient advisory committee of lung recipients "ambassadors" from the biggest/best transplant centers around in North America and Toronot is one. Ambassadors would talk to support groups about the importance of clinical trials to help research towards rejection, etc. We are looking for someone who is involved in the local Toronto transplant community (for ex may attend support groups), who is good at public speaking, reliable, enthusiastic and interested in helping promote lung transplant research and raising awareness about clinical trials. We also hope that interested ambassadors may be able to travel to our training meeting in San Francisco from April 2-4, 2009. If you or someone you know may be a good candidate and are interested in joining this worthy cause, please email Ana Stenzel at I really appreciate your consideration. Ambassadors would be a volunteer position, approx. 3-6 hours per month. Trip to San Francisco would be fully covered. Thank you!
Ana Stenzel

Merv Sheppard said...

Further to our emails and phone calls, it's my pleasure to be an ambassador for your clinical trials awareness project. I'm looking forward to seeing you in San Francisco. Merv.