Showing posts with label Heart and lung transplant. Show all posts
Showing posts with label Heart and lung transplant. Show all posts

Tuesday, November 05, 2013

Record-setting transplant patient still feels healthy after 25 years

When Colleen Kohse woke in a hospital room with a new heart and lungs, she tried not to think about how short her salvaged life might be and instead focused on the fact she could breathe.
On Tuesday (Oct 29), Canada’s longest surviving heart and double-lung recipient celebrated the 25th anniversary of her surgery, which came at the forefront of a wave of transplants that gave new hope to patients who were suffering from cystic fibrosis.
Colleen Kohse (middle), Canada's longest-surviving heart/lung recipient, marks the 25th anniversary of her transplant at the BC Transplant offices in Vancouver, Oct. 22, 2013. (Rafal Gerszak for The Globe and Mail)
Colleen Kohse (middle) at B.C. Transplant offices
Photo: Rafal Gerzsak for Globe & Mail

“I’m really happy to be here and to be able to breathe deeply, though I’m hyperventilating a bit right now,” said Ms. Kohse, 54, who seemed healthy and vibrant, if a bit nervous facing television cameras at a news conference in Vancouver.
“After all these years when I look back I still find it amazing,” she said, thanking organ donors for giving people like her a second chance at life. “It’s not just a donation; it’s a living legacy the families and their donors leave behind. As you can see, people can go on for a long and healthy life, so people are giving that to other people, which I think is tremendous.”
In 1988, Ms. Kohse was sent to England for the surgery, which wasn’t yet being performed in British Columbia.
She waited two months for someone to donate a heart and lungs. Her own heart was healthy, but at the time surgeons liked to do the two organs “as a block,” she said. Her heart went to another transplant patient, a man who went on to live for 17 years and have two children.
“It was sort of like being Frankenstein because I had so many tubes and stuff coming out of me,” she said of waking up after the surgery. “But very shortly I was able to breathe and that was a big thing. My fingers were pink, my lips were pink and it was just a tremendous feeling. To go for all my young life not being able to breathe and suddenly to be able to get up and move around and walk – it was just unbelievable.”
Asked how long she thought she was going to live at that moment, Ms. Kohse said people with cystic fibrosis, a genetic disorder that affects the lungs and other organs, live so close to death they try not to think about that.
“I tried never to look at dying. I mean, people with cystic fibrosis, it’s always in the back of our mind because we have that short lifespan and we don’t plan for the future. We don’t plan ahead a lot of time because of that,” she said.
Dr. Robert Levy, director of the Vancouver General Hospital lung transplant program, said Ms. Kohse’s anniversary is a remarkable milestone.
“It’s a huge event … it really spans almost the whole history of lung transplantation,” he said. “People like Colleen Kohse were pioneers and at the very forefront of what was happening in clinical transplantation at the time. People like Colleen were explorers, going out, not sure whether they’d return. Like an astronaut, going to the moon and hopefully coming back.”
He said about 100,000 lung transplants have been performed worldwide since the early 1980s and in B.C. there have been 255 since the first in 1989.
Dr. Greg Grant, executive director of BC Transplant, the provincial agency that handles all transplants in B.C., said operations such as the one that saved Ms. Kohse’s life couldn’t take place without the donation of healthy organs.
“When we have to ask a family for permission to consider organ donation it’s a really tough time,” he said. “We see families reach out – and that’s what I find incredibly exciting, that at the time of their worst disaster, people look forward, they look forward for something good to happen out of this event.”
Ms. Kohse celebrated the anniversary by having cake with friends, family and medical staff at BC Transplant.
“You Have the Power to Donate Life – Sign-up today! Tell Your Loved Ones of Your Decision”

Tuesday, September 06, 2011

‘I’m being given a second chance at life’ - South African woman waits for heart/lung transplant

By Cate Rayner Independent Online Lifestyle

Everyone should meet Tina Beckbessinger. She is an absolute inspiration. At 30, when most women are looking forward to a full and healthy life, Tina has only a single mission - to remain strong enough to undergo a heart-lung transplant.

“I am positive that my turn will come soon,” she says.

“I am now at the top of the priority list. People say, ‘aren’t you scared?’ I say no.

“I’m being given a second chance to have a normal life, that’s the biggest gift of all.”

Tina hopes by sharing her story to increase awareness surrounding organ donation in South Africa and in particular, the critical shortage of donors.

“I think if more people knew that by signing a piece of paper they could change someone’s life, the situation would improve,” she says.

Tina was born with a number of congenital heart abnormalities, including an irregular heartbeat, narrowed coronary arteries and pulmonary hypertension.

In other words, she was known as a “blue baby”.

“We had to accept that she had a rare condition that would need constant monitoring,” says her mother Bev.

“Tina has a positive energy and loads of enthusiasm, so it has not always been easy trying to persuade her to slow down.”

Modern medical science, including having two pacemakers, the first when she was 16, has given Tina a quality of life she would not normally have had.

But unlike other donor recipients, a heart transplant on its own is not enough.

She would also need a new set of lungs to cope with a normally beating donor heart.

These days Tina, who prides herself on being an optimist, will admit that things are getting tougher. She requires at least 18 hours of sleep within a 24-hour period and undergoes regular extractions of blood to ease the pressure on her heart.

But the last thing Tina wants is for people to feel sorry for her. “I am a survivor and proud of it,” she says.

    How to get involved

  • Phone the Organ Donor Foundation Toll Free 0800 22 66 11. Or register online at www.odf.org.za
  • Always carry an Organ Donor Card in your wallet and place an Organ Donor Sticker on your ID document and on your driver’s licence.
  • It is most important to discuss the decision with your family. Let them know you want to donate your organs after death. Ask them to honour your wish when you die.
  • October 5 is the Organ Donor Foundation 5 km Walk. 8am from the Durban beachfront amphitheatre. Register on the day. For more details contact Alison Reddi at 082 892 0651.
  • Misconceptions about donating organs How do doctors know I am really dead?
  • Two doctors, who are completely independent of the transplant team, have to perform detailed tests before a person can be declared brain dead. The criteria for brain death are very strictly adhered to and accepted medically, legally and ethically in South Africa and internationally.
  • Does being a donor delay the funeral?
  • No. As soon as the donated organs/tissue has been removed, the body is returned to the family to bury or cremate.
  • Does organ/tissue donation leave my body disfigured?
  • No. The utmost respect and dignity is given to the donor at all times. The recovery of organs and tissue are carried out with great care by surgeons and trained staff and the process does not change the way the body looks.
  • Is there any cost involved in becoming an organ/tissue donor?
  • No, it costs nothing to you or your family.
  • Does my family pay for the cost of donation?
  • No, the hospital or state will cover all medical expenses from the moment of diagnosis of brain death, and your family has given consent for the removal of organs/tissue.
  • Can people buy or sell organs and tissue?
  • No. Organ/tissue donation is a gift of life from one family to another. Trading in organs and tissue is illegal.


SAVE SEVEN LIVES*

The Organ Donor Foundation renamed August “Orgust”, in honour of Organ Donor Month. Under the theme Save Seven Lives, “Orgust” served to highlight the statistic that one person could save seven lives if they donated all their organs.

Countrywide, the need for organs has reached a critical level says ODF Executive Director, Samantha Volschenk.

“There are over 4,300 people throughout South Africa currently awaiting an organ transplant operation,” says Volschenk.

“Many of them are children who are forced to put their childhood dreams on hold, waiting for a suitable donor. Others are adults who could become fully functioning, economically active individuals if they received this precious gift of life.” - The Mercury

* Technically one organ donor can potentially save up to 8 lives - (there are 2 lungs and 2 kidneys). Organs that can be donated include the heart, lungs, liver, pancreas, kidneys, and small intestines. Merv.

“You Have the Power to Donate Life – Sign-up today! to become an organ and tissue donor
Tell Your Loved Ones of Your Decision”
South Africa, http://www.odf.org.za/
United States, organdonor.gov
United Kingdom, register at NHS Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves
Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Monday, August 22, 2011

Female heart/lung surgeon thrives in Australia

Medicare Supplement Plans

Still a man's world?


All in a day's work … Emily Granger is one of only a handful of female heart/lung surgeons in Australia. Photo: Andrew Goldie
I find transplantation fascinating: taking a donor heart and sticking it in someone who's at death's door, then watching that heart spring to life. All of a sudden, this patient who's been wobbling around has almost got headaches because their blood pressure is so good. It's absolutely amazing

By Alyssa McDonald The Sydney Morning Herald
From mine sites to operating theatres, gender barriers are still being broken at work.
From Sunday Life
Women may make up half the Australian workforce, but there are still plenty of careers where only a tiny proportion of workers are female. The lack of women in the boardroom and in parliament is much discussed – but what about in operating theatres or on building sites?

There is an economic incentive to enter these occupations. Male-dominated industries tend to be better paid than their female-led equivalents. It's a disparity highlighted in May by the Fair Work Australia tribunal, which ruled that ''gender has an important influence'' in the underpayment of predominantly female community workers in ''caring'' roles.

But it's not all about money. These four women from various parts of Australia have followed different career paths and live very different lives. But each of them has chosen an occupation in which few women are found. Here, they tell their stories:

Emily Granger, 36
A cardiothoracic and heart/lung transplant surgeon at St Vincent's Hospital, Granger lives in Sydney with her husband and two daughters.

We have approximately 100 cardiac surgeons in Australia, and about eight are female. But that's changing; there are more females training now. People are more understanding when it comes to maternity leave – or paternity leave.

I operate two days a week. On the third day, I see my outpatients and new patients. For the other two days, I try to spend time with the girls because they're still very young. A lot of the time you get emergencies or extra operations. But, generally, at least one day a week I can do the kindy drop-off and pick up, and I try most nights to get home in time to put the girls to bed.

To become any sort of surgeon takes a good 10 years after graduation. I find transplantation fascinating: taking a donor heart and sticking it in someone who's at death's door, then watching that heart spring to life. All of a sudden, this patient who's been wobbling around has almost got headaches because their blood pressure is so good. It's absolutely amazing.

Because I was still pretty young when I was training, I thought, "I'll have my children after I've got the piece of paper, then no one can take that away from me." These days, with the change to postgraduate medical degrees, most people are two or three years older, and that is going to put a lot of pressure on women.

Ever since I came to Sydney, I've had the same nanny; she's like a third grandmother. And my husband is very hands-on; he does fly-in/fly-out with mining, so when he's home, he's home. He seems to take the girls to a lot of car yards at weekends, so they have this appreciation of expensive cars.

Personally, I've never had any issue being a female heart surgeon. In the operating theatre, people will test the boundaries a little bit because the only other females are nurses. So you have to make sure your decisions are respected; my manner is very businesslike. As a surgeon, you're a leader in the operating theatre, and I think your behaviour reflects on other people.

A lot of the people we operate on come from out in the bush. They're generally pretty easy-going. Some patients get a little confused and say, "Well, I never saw my surgeon, but this lovely nurse came to see me every day." But it doesn't upset me at all. The point is that they get well.

Kirsty Liddicoat, 29
A planning engineer, Liddicoat works at two iron ore mines in Western Australia.

There are always going to be some men who are horrid; it doesn't matter what industry you're in. Just because you're on the mines doesn't mean there's more of them. But you may have to live in the same area as them for nine or 10 days at a time, and some of the older ones, I find, just don't think females should be there. There are some you just have to ignore, and that can be tough. But then there are some who become like brothers and uncles – good friends.

As a planning engineer, I schedule what equipment is going where and at what time. I'm pretty lucky at the moment, I don't start until 6.30am. We do planning work, we look after reporting, and I also do design work – designing ramps, changing wall angles, all the incidentals.

On my site, there are quite a few women. There are more females than people perceive on mine sites. I've worked in two teams of professionals where more than 50 per cent of the team was female. But that's not including everyone on site. And it does vary.

When I was a geologist I spent time working on oil rigs, where only the chef and I were female. We lived on a boat, there were 30 people, and the chef and I had completely different hours. I worked with really good guys – we got along as friends, they didn't harass me, they didn't expect anything of me. But I have heard stories that were the other way around.

Since the start of this year, I've been the deputy chair of the Women in Mining group. There's about an 18 per cent pay difference for women in the mining industry, there's a lack of access to flexible work practices, and then there's bullying. Men face it as well, but women are targeted slightly more.

My key aim is to set up a phone support line for females in the industry. As a woman, when you go to a new site, everyone knows who you are. It never gets any easier. You do need to establish yourself: "I can change a tyre; I'm not going to put up with you saying things." You can't be a prima donna.

Mining life is tough on relationships. You hear that from men as well. I'm single, and I think part of that is due to the fact I've lived in mining towns for four or five years. I decided about three years ago to work fly-in/fly-out, so I could live in a city and get away from some of the people I work with sometimes. I like the lifestyle. But if you're looking at having a family, then your options are residential or a city-based role. I intend to be at a point in the next five to 10 years where I can work in a city-based managerial position.

I'm working towards my quarry manager's certificate and for that you need time on a blast crew – sometimes you carry buckets that weigh 20 or 30 kilograms each. I'll carry half buckets where the guys will carry full buckets. Most females just don't have the same strength as guys. But as long as you're willing to do a job, they don't mind if you can't carry quite as much - you're doing as many loads. And any excessively heavy lifting is done mechanically these days, anyway.

Ellen Mills, 28
A painting apprentice with the Queensland government's Women in Hard Hats training program, Mills lives in Townsville with her four children.

On an average day we do a lot of internal painting, and some external, depending on the weather. A lot of plastering and sanding. We do a lot of Department of Housing places, but last week we were on a cherry picker, and it was my first time using a spray gun. The best part is the clients' faces once you've done their houses; some have had paint peeling for years.

I'm the only woman on the team, and it's the first time they've had a woman on board, too. It's good. If we have issues, we deal with them right away; just minor issues, like miscommunication between myself and tradies about what I'm supposed to do. But we've kind of bonded; we work well together now.

Before this, I was working part-time as a nurse's assistant. I'd never done any painting in my life. I didn't think I was going to get the apprenticeship. Being a woman from an Islander background, my family and friends just thought, "Nah, you can't do a man's job." At first I thought it was going to be hard because of cultural stuff, but once you give it a go, you learn how to work it. I grew into it, and I love it now.

There's not really any part of the job that's more difficult for me because I'm female. The only challenge I have is being a single mum of four. I've gone through a marriage break-up in the past eight months. Work is very good, but I still have to go home to a full-time job, you know? But I've finally got a routine – daycare is very helpful.

I want to carry on painting, but I also want to try other things. A program like [Women in Hard Hats] will help a lot of women, because it gives them a way to get in the door. We had a family funeral at the weekend, and we had a lot of family come. The majority of them are unemployed, but they're like, "How did you get into where you are now?" And I'm like, "I gave it I a go." People have to be aware that it won't come to you. I've got three daughters; I don't want them growing up thinking they can't do whatever they want to do.

Cheryl Praeger, 62
One of Australia's top pure mathematicians, Praeger is a professor at the University of Western Australia.

I was really lucky as an undergraduate in having two wonderful women as lecturers. That was at the University of Queensland in the mid-'60s, and there were very few women on the teaching staff at universities then. I also had a mentor in [influential mathematician] Bernhard Neumann. And I married a mathematical statistician, who has really supported me throughout my life - I mean, neither of us knew if I was going to get a job.

For the last couple of years I've been on the Federation Fellowship, the premier research fellowship in Australia. So my life has changed quite a bit – I used to have a spread of responsibilities across undergraduate teaching, postgraduate supervision, administrative leadership. These days I am more focused on research. I have a lot of postdoctoral researchers, I'm editor-in-chief of a lecture notes series ... I work all the time.

At my very first international conference in the US, I was the only invited lecturer who was a woman, and in other conferences I've been in a very small minority. It used to feel quite strange, so I'm pretty sensitive to getting to know some of the younger women and trying to be supportive of them. At the moment I've got two women in my research group and one of six PhD students is a woman. It's still a minority, but it is a mix. I am seeing more women now at conferences. I'd love to see more – it will be wonderful when it's 50-50, or even 30-70.

When I entered the mathematics profession, all the women wanted to pretend that they were just like everybody else. Except they weren't. It's only been in the last five to 10 years that we've had meetings of women participants at the national gathering of the Australian Mathematical Society. I don't know what that indicates. There's enough of us to do it? That we still need to do it because it's not completely normal to be a woman in that discipline?

It was really important to me to have a family – I've got two grown-up boys. But I felt to be taken seriously as a mathematician, I shouldn't be taking a lot of time off. I think it's easier these days. It would have been easier for me if I'd had a little more time. I don't know how people do this running around and changing locations. I've been incredibly lucky. I thought [my husband] John and I were coming to Western Australia for two years, and we ended up staying – I became a professor here at the age of 35.

As a woman in academia you have all kinds of roles: being a role model, being involved in helping shape the institution you work for. Somehow you feel like women have to be superwomen and I think a lot of women overachieve in senior roles. Which is good for the profession. Maybe not so good for the women!

“You Have the Power to Donate Life – Sign-up today!
to become an organ and tissue donor
Tell Your Loved Ones of Your Decision”
United States, organdonor.gov
United Kingdom, register at NHS Organ Donor Register
Australia, register at Australian Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Friday, May 20, 2011

Toronto heart/lung recipient will jump from a plane

I've met both Dana Trude and Andrea Clegg. Where they get the strength and energy to "give back" in so many ways is beyond me. Dana was in bad shape when I met her prior to her heart/lung transplant and here she is now competing in road races and promoting organ donation awareness in a huge way. I just met Andrea last week where she spoke to a packed audience about her experience with a Left Ventricular Assist Device (LVAD) and subsequent heart transplant a few months ago. Since her transplant she has done amazing work in organizing a group to promote organ donation and fundraising activities. See the links below.

Dana Trude

By Johanna Weidner Waterloo Region Record
KITCHENER, Ontario — Heart and lung transplant recipient Dana Trude cheered while crossing the finish line after walking a half marathon.

“Then when I did that, a bunch of people cheered me on,” said the Kitchener woman. “It was really cool.”

Feeling healthy and fit enough to join last weekend’s Toronto marathon is a big accomplishment for Trude. Just over four years ago, she desperately needed a new heart and lungs when her organs failed.

While the transplant gave her a new chance at life, she struggled with complications such as diabetes, chronic rejection and liver and kidney trouble. She may need another lung transplant down the road.

But Trude, who turns 50 in July, keeps going and discovered a love for walking. She did a 10-kilometer fundraising walk for the Canadian Diabetes Association in Hawaii last December — also marking the fourth anniversary of her transplant.

“I feel fabulous. I actually feel fabulous. The walking really helps,” Trude said. “I have to have a goal, though.”

Her next goal is a bit more unusual. Trude will jump out of a plane as part of a fundraiser being organized by Cambridge heart transplant recipient Andrea Clegg and her mother Carol Morningstar.

Carol Morningstar and Andrea Clegg

Thinking about all the life-saving care Clegg got at Toronto General Hospital, they wanted to raise money for its transplant unit. Clegg, who got a new heart late last year, said she and her mother had the same idea: “Let’s do something big.”

People will pay for their jump, which means the hospital will benefit from all donations to the June 18 event at the Dunnville airport. Money raised at the barbecue (at the airport) will go toward Life Donation Awareness Association which Clegg founded.

Raising awareness is important for Clegg and the others joining the event. They are all people who have been touched by a transplant or donated their loved one’s organs and tissues.

Clegg wants people to know what a difference an organ donation can make, as well as showing patients that life carries on after a transplant.

“You can still have a life with organ donation,” said Clegg, 27.

More about the skydiving event
SATURDAY JUNE 18 AT THE NIAGARA SKYDIVE CENTRE
536 Regional Road, DUNNVILLE ONTARIO
(www.niagaraskydive.com)
www.tgwhf.ca/sites/testyourlimits/skydivingforandrea/
The all-day event will include activities for families, a BBQ, entertainment, and of course, information on becoming a registered organ and tissue donor.

Read Andrea Clegg's blog: http://stayingtruetomyheart.blogspot.com/
Life Donation Awareness Association

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario at beadonor.ca
For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at organdonor.gov (Go to top right to select your state)
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Friday, April 22, 2011

Heart-lung transplant survivor promotes organ donation awareness



luton today.co.uk

THE best thing about having a heart and lung transplant is being able to walk, talk and breathe at the same time.

That’s according to courageous Luton teenager Ellis Natale. And she should know – she had the pioneering surgery last August.

“I’m so glad to have my life back,” said the 19-year-old, who was born with cystic fibrosis.

“My chest doesn’t rattle when I breathe and I can walk up and down the stairs.

“I took my three-year-old brother Cael to the park yesterday, which might not seem a big deal to some people. But for me to be able to run around and play with him was absolutely priceless.”

The former Lea Manor schoolgirl is now determined to do all she can to help fellow CF sufferers and to raise awareness about organ donation.

“It only takes two minutes to register and just one donor can save up to eight lives,” she explained.

“Before the operation my health was practically non-existent. I was in hospital constantly, My heart was racing, I was breathless and shaky and I had to wear a mask to help me breathe.

“My oxygen levels were so low I was almost taken off the transplant list.

“But now I have so much energy I feel I should do something useful to help others with the disease.”

Ellis, who lives in Marsh Farm with her mother Jo, is joining two friends taking part in Great Strides, a 10km sponsored walk in aid of the Cystic Fibrosis Trust.

To sponsor the trio go to http://www.justgiving.com/Danielle-Canavan0

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario at Trillium Gift of Life Network NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today!
For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Tuesday, April 12, 2011

Judy Postma, Heart/Lung Recipient, Gives Back

Judy (right) is always smiling and has been promoting organ donation awareness since her transplant in December, 2011. Here she is with Andrea Blackler at a quilt raffle promotion. (click image for larger view)

By Vincent Ball The Brantford Expositor

Judy Postma is the picture of health these days and has an active life that includes a lot of travelling thanks to someone she's never met.

Postma is a heart and double-lung transplant recipient and was one of more than 50 people to participate in the 17th annual Brant County (Ontario) Organ Donor Awareness Bonspiel on Saturday.

"I try to come here every year to bring awareness because I think it's a great thing that they're doing," Postma said. "We want to keep it out there, keep people talking about it and ensure people know that organ donation works and it saves lives.

"It's the final act of kindness that you can do."

She received her new organs in December 2001 and the donation has enabled her to live a full life.

"I curl a lot, I do a lot of exercise classes and I travel all over the world," she said. (Judy told me she recently visited Bora Bora in French Polynesia where she actually swam with sharks. Merv)

Although she hasn't met the family of the person who donated the organs, she has been in contact with that person's family by way of an exchange of letters.

Asked to describe her feelings when she speaks about the donor, Postma becomes emotional and has to suppress tears.

"I'm going to start to cry," she said during the interview. "I feel very, very grateful that someone thought about donating their organs.

"I was on the waiting list for about two years when I received them and after the operation, the doctors said that when I received them, I only had about a month left to live."

An inspiration to many of the other participants in Saturday's bonspiel, Postma is extremely fortunate given the province's record with respect to organ donation.

"We have more than 1,500 in Ontario waiting for an organ to keep them alive and we don't have enough donors," Reg Madison, who chaired the bonspiel's organizing committee. "Canada is one of the poorest countries and Ontario is one of the poorest provinces in terms of people making their organs available for transplant."

The bonspiel is held annually to bring awareness to the lives that can be saved through organ donation, the need to sign a donor card and to involve your family, Madison said.

It's imperative that a person's family knows your wishes are to donate a specific organ or a number of organs, he said.

The luncheon included testimonials from organ transplant recipients and participants also had a chance to hear from Frank Markel, the president and CEO of the Trillium Gift of Life Network.

"We have 1,500 people in Ontario who are waiting for an organ. That's 1,500 people whose lives are on hold until an organ becomes available," Markel said. "The frustrating part about this is that their lives can be turned around completely with the donation of an organ. We have all of the scientific information and medical expertise but the problem is we don't have enough donors."

Events like the bonspiel help raise awareness and encourage people to sign their donor cards and make sure their families are aware of their wishes, he said.

"Many people are under the misconception that because they're middle-aged or older that they're too old to donate their organs," he said. "They support the idea but think their organs can't be used.

But it's just not true. We've had organ donors as old as 90. We encourage people of all ages to sign their donor cards and make sure their wishes are known to their families."

He has been the president and CEO of gift for life since 2005 and has heard a lot of inspiring stories over the years. Recently, Markel was in Windsor where he presented medals to the families of donors.

"It's a very sobering experience. I just have to stand in awe of these families who can see beyond their grief following the death of a loved one and have the organs donated.

You see how generous they are and you can't help but stand in awe of their courage and generosity."

For more information: Trillium Gift of Life Network, 522 University Ave. Suite 900, Toronto, On. M5G 1W7, telephone -1-800-263-2833 or 1-416-363-4001, e-mail Trillium Gift of Life or visit the web site: Trillium Gift of Life Network


“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario at Trillium Gift of Life Network NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today!
For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Tuesday, October 26, 2010

10-year-old needs heart and double-lung transplant

Sarah Ettridge (10) suffers from a chronic lung disease and is on the waiting list for a double heart and lung transplant. Photo: Scott Fletcher
By Bridie Jabour goldcoast.com.au

SARAH Ettridge already has a huge heart but soon she will need a new one along with a set of lungs.

At only 10 years old, she visits hospital so often she knows 'almost all the names of the doctors and nurses'.

Sarah's lungs operate at a quarter of her friends' capacity meaning simple activities like walking out to the school oval to play leave her tired and out of breath.

''It affects me because I can't play with my friends. I have to play slow and not running games,'' said Sarah, a grade five student at Caningeraba Primary School at Burleigh Heads.

''I feel like a different person (to others) ... but a cool one.''

Sarah was born a healthy baby but in a stroke of terrible luck she came down with a virus at 10 months old that left her in intensive care for three and half months.

What saved her life has also left her with her current condition, bronchliotis obliterans.

The ventilator and oxygen she received scarred her lungs and while in hospital she caught another virus which meant mucus builds up on the scarring, a condition called ectasis.

Sarah is waiting for a heart and lung transplant but she has just a three per cent chance of finding a donor.

Once she turns 12 however, her chances increase dramatically to 30 per cent because she will be able to receive an adult's heart and lungs.

Sarah knows she needs the operation and says when the day comes she will be both scared and excited.

What she is looking forward to the most is running around with her friends.

''I'll be able to run around with my friends and catch up with my brother and sister.''

The family moved from Sydney to the Gold Coast 18 months ago to give Sarah a better quality of life.

Since arriving she has received tremendous community support, particularly from the Gold Coast Community Fund.

After hearing of her difficulties in moving around at school, the community fund bought Sarah a scooter so she could play with her friends in the playground.

They have also helped parents Troy and Gail out financially providing $5000 in grocery and fuel vouchers.

The Bulletin has joined forces with the Gold Coast Community Fund, Gold Coast Suns AFL Club and Movie World to raise much-needed funds to brighten the lives of needy Gold Coast families.

The White Christmas Stocking Fund starts today and will run for six weeks helping raise money to provide a brighter Christmas for struggling families.

Gold Coast Publications managing director Steve Howard said Gold Coasters had a reputation for generosity.

''Many families are doing it tough at the moment and are not looking forward to a very prosperous Christmas,'' said Mr Howard.

''The White Christmas Stocking Fund aims to brighten the lives of needy families, so we're asking the community and businesses to get behind this fantastic campaign.''

Gold Coast Community Fund chairman Simon Bennett said money raised would help people in emergency situations, including the disadvantaged and disabled.

''Our goal is to ensure we enable people who wouldn't have a very happy Christmas, to have a better one,'' he said.

Make your donation online or at any Commonwealth Bank branch on the Gold Coast in Australia.

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario at Trillium Gift of Life Network NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today! For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Tuesday, August 25, 2009

Heart & Lung transplant recipient pays it forward by raising money for the hospital

Walk a feet after a double transplant

By Tara Dundon Peterboroughtoday.co.uk

A WOMAN given a life-saving heart and double lung transplant now hopes to raise thousands for the doctors and nurses who gave her a "new lease of life".

Lisa Williams (32) was diagnosed with a hole in the heart 12 years ago, and while many people can live a long life with the condition, she found it increasingly difficult to breathe and stay active.

At a check-up in December 2007 she was told that her condition was so bad that a heart and double lung transplant was her only chance of survival.

Mrs Williams, of Larks Rise, Bourne, said: “When I was told my condition had worsened I just had to try to get on with life for the sake of my family.

“I wasn’t given a time limit and I was certain they wouldn’t be able to find me a heart and two lungs in time.

“Before the operation, I had to carry an oxygen cylinder around for most of the day to help me breathe. I often went blue and I was always out of breath.

“I even found it difficult to talk.”

After six months on the waiting list, Lisa got the life-saving call she had been hoping for, and was rushed to Papworth Hospital, near Huntingdon, where she underwent the complex, nine-hour operation.

Now she wants to thank hospital staff by raising money to buy new medical equipment. She intends to complete a six-mile walk on Sunday, September 27 around Grafham Water – something she would never have been able to do if it were not for the transplant.

She added: “A few days after the transplant I was walking about – I felt like I had been given a new lease of life.

“Now I can go for walks and the gym. It is like being a new woman.

“But there are still so many people out there like me who need the help of the wonderful doctors and nurses at Papworth, so I feel it is important I give something back to them.”

Lisa’s sister Kerry Machin will also be taking part in the walk. She added: “It is hard to believe all that has happened in a year. Lisa has turned her life around now and wants to give something back to those that have helped give her the life she has today.”

To sponsor Lisa or make a donation to Papworth Hospital visit http://www.bemycharity.com for more information.

“You Have the Power to Save Lives – Sign Your Donor Card & Tell Your Loved Ones of Your Decision”

Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network. NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today! For other Canadian provinces click here

In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov

In Great Britain, register at NHS Organ Donor Register

In Australia, register at Australian Organ Donor Register

Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants. One tissue donor can help up to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ transplant.

Tuesday, January 20, 2009

Heart & Lung Transplant recipient overcomes health hurdles to run marathons

Mark Black


By Richard Amery - Lethbridge Herald

Motivational speaker Mark Black has never been one to let life’s hurdles slow him down — not even a huge hurdle like a heart and lung-transplant he received in 2002. After the successful operation in Ontario, Black ran his first half-marathon Halifax in 2004, then a full marathon in 2005, followed by several others.

“Most people fall short of what they can accomplish,” Black said from his Moncton home, Sunday. The 29-year-old motivational speaker is in Lethbridge to speak to the Runner’s Soul Marathon Club registration night, tonight at the Yates Memorial Centre at 7 p.m. — the first stop on a quick Western Canadian swing this week.

“I don’t think I’m special at all, I just hope people will push themselves to do what they are capable of,” he said.

Born with a congenital heart defect, he underwent emergency surgery when he was a day old. He recovered from that and then got heavily into school sports such as basketball, soccer and badminton. But when he was 13, his doctors told him to slow down. That lead the goal-focused young man to focus on drama. He took an English degree at Mount Allison University in Sackville, Ont. and then decided to be a teacher. However, midway through his education degree at age 22, he noticed he was tired all the time.

“Before I was very busy and active,” he said.

He added he could barely walk up stairs, and went to see the doctor who discovered he needed a heart transplant. Due to complications, they couldn’t just replace his heart, they had to replace his lungs, as well. So his doctors added him to the transplant list.

“I just slowly deteriorated. I could do day-to-day things like walk and eat, but not much else. I just noticed I was really tired.”

Because of that, his doctors recommended he not be a teacher as he would be exposed to too many germs.

“It was certainly a big change and adjustment,” he said.

After the transplant, he decided to train for a marathon through the Running Room, partially for the social aspect, but also to motivate him to exercise.

“I don’t have enough self-discipline to just exercise for my health. I need a goal to pursue,” he said.

His current goals are making his motivational speaking business a success, and more importantly to be a good dad to his newborn daughter and a good husband to his wife.

“Just being there for them. It’s a different type of goal. Having a daughter really changes the way you look at life. Having a baby creates a whole new set of priorities,” he said.

His doctors have advised him it is all right to push himself. In fact, he may start training for another marathon.

“They’ve reassured me it’s not dangerous,” he said.

The most important lesson he has learned from his experience is to never give up.

“A lot have people have run marathons and they all know there is a point in it where you just want to give up, but the end result is worth it. If you refuse to give up, you win. The ones who fail are the ones who quit,” he said.

“I’d rather die trying than quit. And here it is seven years later and I wouldn’t trade the last seven years for anything,” he emphasized adding there isn’t a day that he doesn’t thank his organ donors. He advised everyone considering being an organ donor to inform their families and friends about their wishes before the fact.

“I don’t know if I had a year if I could express my feelings. I’d tell them what I’ve done with their gifts that have given me a second chance. I’m never going to know who they are, but it’s not like there’s a day I’m not thinking about them.”

“You Have the Power to Save Lives – Sign Your Donor Card & Tell Your Loved Ones of Your Decision”

Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network
For other Canadian provinces click here

In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov

In Great Britain, register at NHS Organ Donor Register

In Australia, register at Australian Organ Donor Register

Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants. One tissue donor can help up to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Monday, January 19, 2009

Japanese hospital attempts first heart-lung transplant

The Japan Times

Suitable donor match gives Osaka University Hospital green light to attempt first operation of its type in Japan

"The operation is the 79th in Japan to use organs from a brain-dead person based on the Organ Transplant Law, which took effect in October 1997"

Kyodo News - The first combined heart and lung transplant in Japan began Saturday evening at Osaka University Hospital, the Tokyo-based Japan Organ Transplant Network said.

The organs were provided by a man in his 30s declared brain dead Friday at Hyogo Emergency Medical Center in Kobe, where he was being treated for head injuries. They will be transplanted into a man, also in his 30s, at Osaka University Hospital in Suita, Osaka Prefecture, a network official said.

Earlier in the day, the man's heart and lungs were removed for transport to Osaka University Hospital.

The recipient was carefully chosen from a waiting list, and donor's heart and lungs had to be put through a strict screening process to ensure they were suitable for the operation, which was scheduled to end Saturday night.

The waiting list for heart-lung transplants began in 2003, but the network has given up on past operations because it was unable to confirm that organs were suitable.

In addition, the donor's liver will be given a man in his 50s in Fukuoka, while the pancreas and a kidney will go to a woman in her 40s in Tokyo and the other kidney will go to a man in his 50s in Nishinomiya, Hyogo Prefecture, the official said.

The donor also was willing to give up his small intestine, but the network said it couldn't find a suitable recipient.

The operation is the 79th in Japan to use organs from a brain-dead person based on the Organ Transplant Law, which took effect in October 1997.

The network said there are about 120 patients waiting for hearts and around the same number for lungs, but that four, including the patient at Osaka University Hospital, are in need of both organs.

“You Have the Power to Save Lives – Sign Your Donor Card & Tell Your Loved Ones of Your Decision”

Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network
For other Canadian provinces click here

In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov

In Great Britain, register at NHS Organ Donor Register

In Australia, register at Australian Organ Donor Register

Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants. One tissue donor can help up to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Monday, January 12, 2009

Michigan transplant limits face review

State may study letting more hospitals do some operations

By Jay Greene Crain's Detroit Business

The Michigan Certificate of Need Commission will decide Feb. 5 whether to appoint a work group to study changing 23-year-old state regulations governing the number of hospitals allowed to offer certain organ transplant services.

Under current regulations, just three hospitals in the state are permitted to perform bone marrow transplants, and just three are allowed to conduct heart-lung and liver transplants.

Regulations for pancreas and kidney transplants do not restrict the total number of hospitals, but hospitals must perform a minimum number of the procedures each year to maintain their certificates.

Royal Oak-based William Beaumont Hospitals and St. John Health in Warren have asked the state to revise organ transplant regulations. They want the state to open up the CON process to allow other hospitals to apply based on institution-specific criteria or other reasons, including relaxed minimum volume restrictions.

On the other hand, the three hospitals allowed to do bone marrow transplants, Henry Ford Health System in Detroit, the University of Michigan Health System in Ann Arbor and Barbara Ann Karmanos Cancer Institute in Detroit, want the rules unchanged.

The University of Michigan's C.S. Mott Children's Hospital and University Hospital and Henry Ford also hold CONs to perform heart-lung and liver transplants.

In a statement to Crain's Detroit Business, Robert Riney, Henry Ford's COO, said the three approved transplant centers are enough to handle the number of patients seeking bone marrow and heart-lung and liver transplants.

“Adding another center would reduce volume at these centers, resulting in higher cost per transplant and therefore impacting changes to employers and patient out-of-pocket expenses,” Riney said.

“There are even fewer solid organ transplants (heart-lung and liver) performed compared to bone marrow transplants,” he said. “Adding more centers would dilute the volume at current centers even more.”

Several years ago because of low volume, Dearborn-based Oakwood Healthcare voluntarily surrendered its CON for bone marrow transplants, according to the state Department of Community Health.

Because of low volume, St. John and DMC's Harper University Hospital in Detroit also dropped their CONs for pancreas transplants.

However, officials for St. John are supporting changes in the pancreas transplant regulations to eliminate the required 12 minimum number, which would allow hospitals to reinstitute the services, according to testimony at an October CON Commission hearing.

Norma Hagenow, vice chair of the CON Commission, said it is likely the commission will appoint either a work group, a standard advisory committee or ask DCH to look at updating the organ transplant standards. New rules could be ready for review and possible approval by September.

“I have an idea we will open it up to consider whether the regulations need to be reviewed,” Hagenow said. “There hasn't been a need to change the regulations in 23 years. There have been changes in technology, and there is a little more interest in it now.”

Dr. Adil Akhtar, director of oncology services at Beaumont Hospital in Troy, said Beaumont wants the CON regulations revised to make it more convenient for patients and to hold down health care costs.

“We already have the pieces in place here, and the additional financial impact would be minimal,” Akhtar said. Beaumont has three bone marrow transplant specialists, lab and imaging technology and a dedicated nursing staff, he said.

“We already diagnose the patient and start the treatment, but then we need to send patients to totally different teams of doctors, who do the entire testing again,” Akhtar said. “There is a duplication of services and costs.”

Akhtar said the cost of bone marrow transplant services has dropped considerably since the regulations went into effect 23 years ago.

“Technology has evolved and more people are candidates,” Akhtar said. “Used to be just 55 years or younger were recommended. Now there is no age limit.”

For patients using their own bone marrow, the cost for a transplant could be $75,000, he said. If a donor is required, the cost could be $150,000 to $250,000, he said.

Akhtar said Beaumont could conduct at least 40 to 50 bone marrow transplants a year. In 2007, the three bone marrow transplant hospitals performed 536 transplants, a number that has been rising the past three years.

“We could do more than 50. Karmanos' transplant patients come from up north. They could easily go to Beaumont,” Akhtar said.

But in the October CON Commission hearing, Barbara Jackson, an analyst with Blue Cross Blue Shield of Michigan, said the state's largest insurer only could support studying the regulations if “compelling evidence” of community need is demonstrated.

“Opening up the standards for review could result in more programs, which could seriously deplete existing programs, patient volumes and staffing, reduce quality of care and increase health care costs,” she said.

On heart-lung and liver transplant services, Jackson said there is no need to review the standards because volumes have been stable.

Kenneth Matzick, Beaumont's CEO, said the CON Commission should appoint a committee to develop institution-specific criteria for bone marrow transplant services with minimum volume thresholds.

“Given the fact that bone marrow transplants can now be performed on an outpatient basis and often cost significantly less than chemotherapy or other cancer treatments, there are now reasons for changing this standard,” he said in a letter to the CON Commission.

Beaumont has CON approval to conduct kidney and liver transplants and may seek approval to conduct pancreas transplants. If the regulations are changed, Beaumont might seek approval for heart-lung and liver transplants, Akhtar said.

Dennis McCafferty, director of health policy with the Novi-based Economic Alliance of Michigan, said additional transplant capacity in Michigan is not needed.

However, McCafferty said the alliance could support expanding the number of hospitals offering bone marrow transplants to the western side of the state.

“There should be a minimum volume to ensure staff is well-equipped and experienced,” McCafferty said. “When too many places are doing it, patients take a higher risk.”

But Matzick said there are no studies that link higher volume with better outcomes for bone marrow transplants.

“The most compelling argument we believe, however, is that patients are being negatively impacted if they are forced to leave their existing physician and hospital,” he said. “The CON Commission has not studied increased health care costs or impacts on the patients of these transfers.”

“You Have the Power to Save Lives – Sign Your Donor Card & Tell Your Loved Ones of Your Decision”

Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network
For other Canadian provinces click here

In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov

In Great Britain, register at NHS Organ Donor Register

In Australia, register at Australian Organ Donor Register

Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants. One tissue donor can help up to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Wednesday, December 17, 2008

A teen girl's broken heart

Her life, dreams will fade without a heart & lung transplant

Adriana Garcia

Adriana, 14, laughs as her sister Mariana, 2, tells her to be quiet while her mother Mirna and other sister Jessica, 10, stand behind her at the family’s home in La Victoria on Dec. 2. Photo: Nathan Lambrecht

By Sara Perkins The Monitor McAllen,TX,USA

LA VICTORIA - Adriana Garcia will not live to see 20 without a significant amount of money her family does not have.

She will never become the lawyer she wants to be, nor will her cheeks fill out to make the pretty, serious teenager look even more like her pretty, round-faced mother.

Instead, the 14-year-old with bright, appraising eyes and a broken heart will deteriorate, sleeping more and rising less, requiring more canned oxygen. She will waste away and she will die.

ADRIANA

The Garcias - Adriana, her sisters, Jessica and Mariana, her mother, Mirna, and father, Jorge - moved to a rented trailer east of Rio Grande City two years ago from Ciudad Mier, Tamps. They left behind a stable life for poverty, with a slim hope that in the United States their daughter could get a new heart and lungs, and with them, a future.

In Mexico, doctors told them, there was simply no hope she would receive an organ transplant to replace the damaged heart with which she was born.

It's a Friday afternoon and at the table in the family's tidy kitchen, Adriana is struggling through a series of pre-algebra problems under the watchful eye of teacher Paul Cho. Her mother struggles to keep Mariana, 2, quiet while her sister studies.

When Cho asks her a question she cannot answer easily or punch into her calculator, Adriana's hand strays to the raised scar on her chest.

In January, doctors at Driscoll Children's Hospital operated on her heart. She has another scar at the base of her rib cage, evidence of a stopgap attempt to keep the organ working for a while longer, an emergency measure that sent her through three different hospitals and produced a stack of still-unpaid bills.

Only two cardiologists would agree to the surgery, which repaired the hole in her heart but left it weaker than before, Mirna said. The rest thought Adriana would not be able to survive the trauma.

Cho and another teacher see Adriana in her tiny home because she cannot easily attend school. The Rio Grande City school district's special education department nominated the Garcias for the "12 Days of Christmas" project.

The series, sponsored by the United Way and The Monitor, highlights local families in need and asks Rio Grande Valley residents to make their holidays a little better.

Adriana takes 10 pills every day, and she tires more and more easily since the surgery earlier this year. Teachers at Rio Grande City High School scheduled her classes so they were close together, so she wouldn't have to walk too far between them, but three days into the school year, she broke her foot. Hobbling on crutches made the school day all the more exhausting and eventually she was told to stay home.

"This young lady wants to go back to school, incredible as it may sound," said Silvestre Reyna Jr., a teacher for homebound students, who visits the Garcia home twice a week to bring assignments and provide a few hours of instruction. "The first meeting I had with her, she said, ‘As soon as this cast is off, I'm back in school.'"

NUMBERS

Compared to the wrenching choices hospital administrators have to make every day, the choice not to refer Adriana to a transplant center relatively easy. The numbers came nowhere close to adding up.

She's ineligible for Medicaid and wouldn't be able to get private insurance even if her family could afford it - a congenital heart defect is a pre-existing condition. Without either avenue, she cannot pay for the medical testing required to certify her for the transplant waiting list, much less the expensive surgery or a lifetime of medications to keep her body from rejecting the new organs.

Cathy Camp, a registered nurse at Driscoll's cardiology center, could not speak specifically about the Garcias because of medical privacy laws, but said in a similar situation the hospital would call transplant-ready hospitals to see if they had any programs to pay for indigent patients.

"I believe there really wasn't anything," she said.

Without that referral, Adriana is not even on a waiting list for the organs she needs.

According to the Organ Procurement and Transplantation network, nine other people in Texas are waiting for a heart-lung transplant. There are 84 others across the country - as well as 2,705 people waiting for just hearts, and 2,019 needing only new lungs.

HOPE

Jorge, Adriana's lanky father, is a mechanic who gets work through friends.

Her mother, Mirna, spends her days caring for Adriana and for little Mariana while 10-year-old Jessica is in school. Their house is neat as a pin and decorated for Christmas, but Mirna has to make careful choices about what to light for the season: Even much-needed heaters or in-window air conditioners routinely blow the fuses on the house's inadequate wiring.

Mirna's aunt, Silvia Martinez, lives nearby and often comes to visit. She helped place an advertisement in Starr County's weekly newspaper asking for donations to aid in Adriana's care. She also helps to organize the bingo games in the neighborhood that raise money to buy medication.

A bill in Mirna's growing stack, from Dr. Juan Aguilera's office, shows that some giving is indirect: It asks the Garcias to pay $195; $1,140 in additional costs are listed under "insurance pending," despite the family's lack thereof.

Starr County Memorial Hospital hasn't been as forgiving. A collection agency is squeezing Mirna and Jorge for $1,030.75: the cost of several ambulance rides.

It would be easy to give up hope, were the alternative not so unthinkable. Their lovely, wide-eyed daughter deserves to grow up.

"We're waiting," Mirna said in Spanish, her hand resting on Adriana's squared shoulder. "We have faith in God that somebody will be able to help us."

“You Have the Power to Save Lives – Sign Your Donor Card & Tell Your Loved Ones of Your Decision”

Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network
For other Canadian provinces click here

In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov

Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants. One tissue donor can help up to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Sunday, November 02, 2008

Heart/Lung transplant recipient meets donor family

Tom Susco (left) and his wife, Nancy, meet 65-year-old Paul Dean of Lahaina at the Kahului Airport. Dean received a new heart and lungs from the Suscos’ son Tim in August 2007. Photo: Claudine San Nicholas.

I can imagine the emotions that were in play during this heartwarming meeting. I never met my donor family (I wrote them a letter but received no response). If I ever did meet them I would tell them that their loved one did not die in vain because they were still living within me and that I would try to live the best life that I could so both their loved one and I would continue to live a long and fruitful life. Merv.

By CLAUDINE SAN NICOLAS MauiNews.com

KAHULUI - A Lahaina man with a new heart and lungs made an emotional connection Sunday with the couple who made his successful transplant happen.

Paul Dean, 65, struggled to find the words to describe his feelings after meeting Tom and Nancy Susco of Reston, Va., parents of the donor, Tim Susco.

Tim Susco died Aug. 15, 2007, at age 25 after suffering a ruptured brain aneurysm. His heart and lungs were donated to Dean, who in August 2007 had been told that he would not live past the end of the year without the organ transplants.

Tom and Nancy Susco had fulfilled a family agreement to donate Tim's organs at the time of their son's death.

When the Suscos mentioned plans to celebrate their 30th wedding anniversary this fall in Hawaii, Dean and his wife, Grayce, jumped at the chance to meet face to face on Maui.

Donor families and donor recipients are never required to connect, let alone meet in person.

"For us, it wasn't optional," Paul Dean said. "For us, we just had to show some sort of appreciation and so we wanted to meet them. We'll never be able to pay them back but we can thank them."

Nancy Susco said she believed her family was blessed to have met the Deans and their family, including six children and 21 grandchildren.

"We are so lucky that they wanted to meet us," Nancy Susco said. "Even though the idea seems weird, it was really the right thing to do. They made us feel us comfortable and we're just overwhelmed."

"I was so happy," Gracye Dean said, about her husband meeting Nancy in particular. "He allowed her to cry and to grieve."

Both Tom and Nancy Susco described their initial meeting with Paul Dean as "overwhelming." The Suscos and Deans have since shared a meal together and they hope to meet again before the Deans leave Maui on Friday.

"It doesn't change the fact that Tim died but it does seem worthwhile," Tom Susco said. "I especially was very nervous. You want it to go well, but you don't know until it happens."

Nancy Susco said she and her family never hesitated about organ donation because they had discussed it with both sons (Tim has an older brother, Tom) when they were high school seniors and first signed up to be organ donors.

As a nurse, Nancy Susco knew from talking to Tim's doctors that her son's survival from the brain aneurysm was virtually nil.

"We weren't going to get the miracle we wanted," she said.

The family then decided to carry out Tim's wishes to have his organs donated. A 3-year-old and a 17-year-old split his liver, the only organ in the body that could go to two people because of its ability to regenerate.

Two adult women each received a kidney. Two people received corneas, and Tim's skin and bones were placed into a donor bank that assists burn victims and people who suffer from major bone injuries.

The Suscos said organ donations can assist as many as 50 people. The gift is even more significant considering the impact the donation has on a recipient's family as well, Nancy Susco said.

The Suscos have been in contact through letters with most of Tim's organ recipients and their families. Paul Dean and his family are the first of the receiving families they've met.

Paul Dean received his new heart and two lungs on Aug. 17, 2007, two days after Tim Susco's death.

"Everything's good," Dean said of his condition today. "I feel great."

In November 2006, doctors offered a grim prognosis. He had suffered an illness that damaged his heart and caused steady deterioration to his lungs. His surgeon initially rejected the idea of lung surgery, in part because Dean's heart had been damaged by the muscle disease initially diagnosed years before.

At 6 feet tall, Dean was a robust 285-pound heavy equipment operator who worked for Hawaiian Dredging for 27 years before retiring. Soon after, he was struck by the disease that that damaged his heart and spread to the lungs, causing bouts of shortness of breath that steadily worsened. By 2006, he was down to 150 pounds and was placed on oxygen 24 hours a day.

To move about, Dean had to use an electric scooter.

He has since given up the scooter, and only three months after his transplant, he was able to return home to Lahaina.

Earlier this year, he was able to have a wish fulfilled - to see the oldest of 21 grandchildren graduate from high school.

Paul and Grayce Dean continue to be active in the Boy Scouts by mentoring adult leaders. Grayce Dean assists Eagle Scouts and was especially impressed when she learned that her husband's benefactor had been an Eagle Scout.

Tim Susco was a 1999 graduate of South Lakes High School in Virginia and a graduate of Temple University in Philadelphia. At the time of his death, he was working in Hollywood, Calif., having just received a promotion as a key assistant location manager on the TV show "Heroes."

The Susco family has multiple connections to health care. Father Tom is a pharmacist; Nancy, a nurse; brother Tom is a physical therapist. As an added response to the gifts from Tim, the Suscos established a Brain Aneurysm Awareness Foundation and have raised $70,000 for research in brain aneurysms and organ donation.

Both the Deans and Suscos have made it their mission to raise awareness about organ donation.

Paul Dean said he had not been aware of organ donation until his own illness made him a recipient. Since then, he has committed to organ donation promotion and recently assisted the Organ Donor Center of Hawaii with donor card signups at the Maui County Fair. The Deans' six adult children have all volunteered to be organ donors.

There are currently 364 people in the state waiting for an organ, according to the Hawaii center.

For more information about organ donation, call the Organ Donor Center of Hawaii toll-free at (877) 855-0603, or visit the Web site.

“You Have the Power to Save Lives – Sign Your Donor Card & Tell Your Loved Ones of Your Decision”

Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network
For other Canadian provinces click here

In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov

Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants. One tissue donor can help up to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves