Showing posts with label Canadian Blood Services. Show all posts
Showing posts with label Canadian Blood Services. Show all posts

Saturday, January 07, 2012

Canadian Transplant Officials Visit UNOS

Five officials of Canadian Blood Services visited UNOS recently to learn more about the U.S. system of organ donation and transplantation. Canadian Blood Services has been working with the community to develop recommendations for a national organ and tissue donation and transplant system in Canada.

"As part of the global transplant community, we appreciate the opportunity to learn from our colleagues at UNOS and to share some of our own experience," said Tracy Brand, RN, BscN, Director of Organ Donation and Transplantation at Canadian Blood Services. "The advice and information provided by the UNOS team has been invaluable.”

“We are glad to provide our Canadian colleagues with information and assistance to support them in their ongoing development of a national network, and to learn from their experience as well,” said UNOS Executive Director Walter Graham. "While each national transplant system has unique circumstances, we all share many common issues and challenges in meeting the needs of transplant candidates."

UNOS’ Center for Transplant System Excellence coordinated the two-day visit, which included presentations from and discussion with representatives of many UNOS departments. The visitors were also honored guests at the Donate Life Partnership’s Tree of Life celebration, hosted Dec. 1 at UNOS' headquarters.

Canadians can have their say at the following link: Public Dialogue on Canadian Govt initiative to improve organ & tissue donation and transplantation

“You Have the Power to Donate Life – to become an organ and tissue donor Sign-up today!
Tell Your Loved Ones of Your Decision”
Australia, register at Australian Organ Donor Register
New Zealand, register at Organ Donation New Zealand
South Africa, http://www.odf.org.za/
United States, donatelife.net
United Kingdom, register at NHS Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves
Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You.

Thursday, June 02, 2011

Canadian national organ registry and allocation system remains remote

CMAJ
Hopes that Canada will have a national organ transplant registry and allocation system in the foreseeable future remain remote, although Canadian Blood Services officials are optimistic that three small registries will inch administrators in that direction.

The nonprofit organization was tasked with developing a national registry and allocation system in 2008 and opted to start by developing specialized registries in three areas that cater to a small fraction of waiting transplant recipients.

But plans to roll out a broader strategy for some manner of national registry and allocation system remain in the developmental phase, says Chris Brennan, communications manager of the organization’s Organs and Tissues division. Canadian Blood Services continues to have discussions with provincial and territorial governments about means of standardizing the process of organ allocation, he adds.

One of the three specialized registries, the Living Donor Paired Exchange, was launched in 2009, while the registry for “urgent status patients” is expected to become operational this fall and one for “highly-sensitized kidney patients” will be initiated in 2012.

Funding for development of the specialized registries was made possible under a $35-million, 5-year agreement between the federal, provincial and territorial governments.

Organ donation and allocation in Canada has long been plagued by jurisdictional wrangles. When Canadian Blood Services was asked to take over the file in 2008, it was hoped that the good will the agency has developed through the years in its oversight of blood donations would help it negotiate the perilous jurisdictional waters, which have resulted in a hodgepodge of donor registration processes and a range of waiting times for transplant candidates across the nation.

Still observers are hopeful that the specialized registries will lay the spadework for a national allocation system for all organs. At a minimum, they should help to create some consistency between jurisdictions, says Dr. Ian Alwayn, surgical director of kidney transplants at the Queen Elizabeth II Health Sciences Centre in Halifax, Nova Scotia. “The goal of the national organ registries is to gain transparency in the way organs are allocated and to set standard rules … so that there is no discrepancy in the way that organs are allocated from one province to another.”

Brennan says the Living Donor Paired Exchange, which became operational in November 2010, has been “really successful.” The program matches living donors with compatible recipients. Patients who find a willing donor whose kidney isn’t compatible can essentially trade that kidney for one that is compatible and offered for trade by a different donor-recipient pair. That has often necessitated multiple exchanges.

Brennan says Canadian Blood Services remains hopeful that the urgent need registry will launch this fall. The wait list, which is intended for those who are “hours away from death,” will be web-based and updated in real time. It will replace the “status 4” urgent case list now maintained by the London Health Sciences Centre (http://www.cmaj.ca/cgi/doi/10.1503/cmaj.061256).

The national registry for highly-sensitized kidney patients, meanwhile, hopes to find organ matches for people with antibodies that make finding a match difficult.

Brennan offered no explanation for why a draft proposal for a national organ and tissue registry has been delayed. Canadian Blood Services had indicated they would unveil such a draft plan as early as 2009.

Also unresolved are mechanisms to make organ donor registration less cumbersome. Currently, registration processes vary significantly by provinces. In British Columbia, donors can register consent online. Ontario requires residents to forward a form to the nearest Service Ontario center to get a sticker or a new health card. But the province is considering a move toward a web-based registry following a recommendation from its auditor general.

Although Health Canada is investing roughly $3.6 million annually over five years to promote organ donations, public opinion surveys show that many Canadians remain unaware about how to register as donors.

Alwayn says a more streamlined approach to donor registration would encourage more donations, which will become ever more essential as the need for organs rises with the average age of Canada’s population.

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario at beadonor.ca
For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at organdonor.gov (Go to top right to select your state)
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save or enhance the lives of up to fifty people with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Saturday, July 17, 2010

Organ shortage a concern in Canada

The Canadian Blood Services (CBS) was given a mandate by the Federal, Provincial and Territorial Deputy Ministers of Health (excluding Quebec) to develop - in consultation with stakeholders, the public, and the medical community - a recommendation for a new national system for Organ and Tissue Donation and Transplantation (OTDT). Canada is one of the only countries in the western world without a national, coordinated system for organ and tissue donation and transplantation (OTDT). I had an opportunity to speak with Kim Young who is quoted in this article as well as the entire board of directors of CBS and suggested to them that the best way to increase organ and tissue donation in Canada would be to start by establishing a national on-line registry.

By Lana Haight Leader-Post, Saskatchewan News Network

A lack of awareness is behind the continued shortage of human organs available for transplantation, says the head of the program in Saskatchewan.

"We've flat-lined for years and years and years in Canada," said Raylene Matlock, manager of the Saskatchewan Transplant Program, based at St. Paul's Hospital in Saskatoon.

In Saskatchewan, corneas and other types of tissue are retrieved more often than organs from people after they've died. In 2009, tissue was retrieved from 30 deceased donors. Typically, organs are retrieved from about 14 deceased donors each year, says Matlock.

At any one time, about 125 people in Saskatchewan are waiting for some kind of transplant.

While about 5,000 people die annually in Saskatchewan, not all have organs that would be suitable for transplanting, says Matlock.

"An ideal donor is somebody who's been healthy for most of their life and died of a catastrophic event to their brain. Now, a catastrophic event can include many things: an overdose, a trauma, a gunshot wound, a massive stroke or cerebral aneurysm," she said.

And even with suitable donors, not all tissue or all organs are retrieved. From the 14 donors in 2009, 13 livers, five hearts and 19 kidneys, including pairs, were among the organs made available for transplantation.

Matlock would like to see Saskatchewan's donation rate double to 28 deceased donors each year, but to accomplish that, people in the province need to start talking to their family and friends.

"If they have not talked to their family about what their wishes are, sometimes it makes it very difficult at this time for a family to decide what to do," said Matlock.

"Some people aren't comfortable with death, finality. And some aren't comfortable that we're keeping their loved one alive on machines. They have to be educated by us about brain death and what that actually means, that there is no blood flow to the brain. We do tests that confirm it. We do scans that confirm it."

Only the next-of-kin can provide legal consent for organs to be retrieved from someone who has died. A signed organ donor card or a sticker on a health card does not provide that consent for organ donation, says Matlock. Still, for those people who want the cards, they are available from the Saskatchewan Transplant Program offices in Regina at 766-6477 or Saskatoon at 655-5054.

Health-care workers also need to become more aware of their responsibility to encourage organ donation, says Kimberly Young, executive director of organs and tissues for Canadian Blood Services.

"No one would ever dream of not diagnosing an appendix, but often it happens that they don't diagnose the opportunity for organ donation. You would be held accountable if you missed diagnosing an appendix even if it was for someone who was 95 years old," said Young.

"We shouldn't leave it up to the person. We should have a system that says (organ donation) is the responsible and required diagnosis."

The Canadian Blood Services is drafting a document for the deputy ministers of health from the federal, provincial and territorial governments that will recommend ways to increase the rate of organs from deceased donors. Establishing a legally binding national electronic registry for people who want their organs retrieved after death could be one of the recommendations, says Young.

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network. NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today! For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help 75 to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Sunday, June 13, 2010

Canadian woman in line for 'domino' kidney

54-year-old to undergo 4th transplant

BY SONJA PUZIC, The Windsor Star

WINDSOR, Ont. -- Since she was 16, Debbie Storie has depended on the sacrifices of others to survive.

After suffering kidney failure, she received a kidney from her sister but her body rejected the organ immediately. Storie then received another kidney from an unknown young man killed in a motorcycle accident. Her body rejected that one as well.

Then came the gift from the anonymous family of a little boy who died tragically. His kidney carried Storie for nearly 30 years -- a rare feat. But the organ's lifespan has come to an end and Storie, 54, needs a fourth transplant.

Although she didn't want to ask another family member to go through the physically and emotionally draining process of organ donation only to risk another rejection, Storie's brother-in-law, Larry Vandelinder, offered one of his kidneys. Problem is, he's not a close enough match and Storie is considered a high-risk transplant recipient because of her previous rejections.

But thanks to a relatively new Canadian Blood Services program, Storie will still get a viable kidney and Vandelinder's will go to someone else who desperately needs it.

The national Living Donor Paired Exchange Registry facilitates swaps between pairs of kidney donors and recipients based on compatibility of blood and tissue types. That means Vandelinder's kidney will be swapped with that of an anonymous donor who is a better match for Storie and go to an unknown recipient matched with Vandelinder.

"It's an amazing program that I don't think many people even know about," Storie said. "It's given me another chance. My brother-in-law has just been amazing. The fact that he's giving up a kidney doesn't seem to faze him. He just wants to help."

Storie is scheduled to receive a new kidney as part of a so-called "domino" transplant, involving eight pairs of donors and recipients in different parts of the country. That number could change if one or more people back out or are unable to go through with the procedure. Vandelinder will fly out to Vancouver to have his kidney removed there, while Storie will go to the London Health Sciences Centre for her transplant on the same day. The transplants are expected to take place in about two months.

Organizing multiple kidney transplants through the paired exchange program is a "huge, complicated" process, involving massive co-ordination between operating rooms and surgeons across the country, said Canadian Blood Services spokesman Chris Brennan.

"It's worked out down to the last minute because we want all the transplants to happen at the same time," he said.

While domino transplants can be arranged if everything falls into place, kidney exchanges involving just two pairs of donors and recipients are more common, Brennan said.

The paired exchange registry has been "very successful" so far, resulting in 37 transplants, Brennan said. There are 107 pairs on the registry and that number is expected to increase as the program expands to other provinces. Pilot transplant programs through the registry were done in Ontario, Alberta and British Columbia.

Storie said she is grateful for all the people who've joined the registry because she was matched with a donor shortly after adding her name to the list. Storie's family and friends will be holding a fundraiser to help offset all the travel costs involved, including Vandelinder's plane ticket to Vancouver and hotel bill.

The Living Donor Paired Exchange Registry is expected to increase live kidney donations in Canada by 20 per cent or more. Currently, about 35,000 Canadians suffer from kidney disease and 3,000 people are on waiting lists for a kidney transplant.

A pasta and chicken dinner fundraiser for Debbie Storie and her family will be held June 26 at the Moose Lodge, 777 Tecumseh Rd. W. Tickets are $15 per person and can be purchased at the door or in advance at the Windsor Family Credit Union or the Ukrainian Credit Union. Tickets can also be ordered over the phone at 519-979-4295 or 519-948-9108

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network. NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today! For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help 75 to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You

Tuesday, May 25, 2010

Public dialogue on organ & tissue donation & transplantation in Canada

A public meeting (view agenda) will be held this coming weekend in Toronto to give Canadians a chance to have their say and give input to the design of a new system for Organ and Tissue Donation in Canada Saturday, May 29th, 8am to 4pm (Four Points by Sheraton – 6257 Airport Road, Mississauga, ON).

Advance registration (below) is required to accommodate the needs of the participants and adequately prepare and plan for food and refreshment.

Canadian Blood Services has received a new mandate from the Federal and Provincial governments to look at designing a new system for improving Organ and Tissue donation.

Some of the following information is taken from a Background report prepared last year for Canadian parliamentary committees. (Reading this pre-meeting will bring you up to speed on the current situation in Canada).

This is a great opportunity to have your voice heard on this very important topic for organ and tissue donation and transplantation in Canada. Anywhere from 140 to 250 Canadians die each year while waiting for an organ transplant. Canada’s cadaveric donation rate is reportedly lower than that of most of the countries to which it is compared. The cadaveric donor rate in Canada has declined slightly over the past 10 years from approximately 15 to 13 donors per million population (PMP).

International comparisons of organ donor rates usually include Spain and the United States, whose donor rates are reportedly 33.4 and 21.4 PMP respectively. Underlying this unfortunate statistic is the fact that Canada has one of the lowest rates of organ donation in the industrialized world. And yet studies show about 50% of Canadians are unaware of what their loved ones wanted regarding organ and tissue donations.

Please register for the event
http://www.blood.ca/speakup

You can also register by calling:
Debbie White
OTDT-PA Coordinator
Canadian Blood Services
1800 Alta Vista Drive
Ottawa, ON K1G 4J5
e-mail: debbie.white@blood.ca
Telephone: (613) 739-2404
Fax: (613) 739-2400

“You Have the Power to Save Lives – Register to be an organ and tissue donor & Tell Your Loved Ones of Your Decision”
Register to be a donor in Ontario or Download Donor Cards from Trillium Gift of Life Network. NEW for Ontario: recycleMe.org - Learn The Ins & Outs Of Organ And Tissue Donation. Register Today! For other Canadian provinces click here
In the United States, be sure to find out how to register in your state at ShareYourLife.org or Download Donor Cards from OrganDonor.Gov
In Great Britain, register at NHS Organ Donor Register
In Australia, register at Australian Organ Donor Register
Your generosity can save up to eight lives with heart, kidneys, liver, lungs, pancreas and small intestine transplants (see allotransplantation). One tissue donor can help 75 to 100 other people by donating skin, corneas, bone, tendon, ligaments and heart valves

Has your life been saved by an organ transplant? "Pay it forward" and help spread the word about the need for organ donation - In the U.S. another person is added to the national transplant waiting list every 11 minutes and 18 people die each day waiting for an organ or tissue transplant. Organs can save lives, corneas renew vision, and tissue may help to restore someone's ability to walk, run or move freely without pain. Life Begins with You