By Caroline Gammell Telegraph.co.uk.
Photo: PAThe 16-year-old was originally not listed for a transplant as her condition - Wegener's Granulomatosis – is so rare.
However, she is now in the process of getting onto the transplant list.
On Sunday, she told The Daily Telegraph how important it was for people to continue donating organs and what a critical situation she is in.
"It seems like my life is a huge maybe and the maybe is like a rope I'm holding onto keeping me from falling into the dark abyss below.
"Without a transplant I will not make it out of my teens. It is not only vital to keep me alive but also to drastically improve the quality of my life.”
“Most of my teenage years have been spent in hospital. Without a transplant I won't get the chance to live my life and have normal experiences.
“Hopefully I will get a second chance to live my life and be able to do things I haven’t had the chance to do.
“I am an A* student and I still try to do as much school work and exams as possible but it is hard to keep up."
Ayesha, from Newcastle, is reliant on a ventilator and supported by the charity Breathe On which gives help to people and their families on long term ventilation.
Victoria Townsend, chief executive of the charity which is under threat financially, said it was vital organ donation continues.
“People are going to be scared out of their wits by what has been going on with the records,” she said.
“However the most important thing is the health of the nation and there are so many people desperate for a transplant.”
Rachael Wakefield, 22, waited over a year for her double lung transplant and was finally operated on last month.
She has suffered from lung disease from the age of 15 but on Sunday walked 50 meters without ventilation and will soon be out of intensive care.
She told The Daily Telegraph: "If my donor family had not taken the decision to donate their loved one's organs I would not be here today.
"Mistakes and glitches happen unfortunately but something such as this should not put people off organ donation.
"Before organ donation takes place donor families are given space, time and a lot of support from transplant coordinators to help decide if organ donation is right for them and their loved one.
"Organ donation is the gift of life and should not be viewed any other way."
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